I haven't up dated for long time so here we go! We have had several visits to different docs. They have all been pretty good! Just a little scary to hear things that we could expect. None of which have happened. They had last told us that we could take her off her feeding tube during the day Yea!!! She only has to be on the feeding pump at night for 10 hrs.
She still has to leave the tube in her nose all the time :( because, it makes her sore to pull it out and put it back in everyday and night. She is drinking the nasty formula they make her take like a champ though. We have a certain amount within so many hours she needs to drink and she now goes above and beyond. When we say she is a trooper she really is. A smart little thing to she figured out how to flik that little tube out of her stomach through her throat and out her nose in one quick second we had a week there i couldn't even literally blink. She is doing a little better with that she relized it hurts shoving that thing back in every night.

the speacilist and the surgeon both thought her spleen was still enlarged and were a little nervous about that. They let Jeff and I know it would not take much for them to put her on the donor list now. But, she surprised them yet again well she will when they hear her latest test results we just had drawn here in Showlow. One of Jaclyn's other docs here used to work with all her docs from Phoenix Childrens ,and retired in Showlow how lucky are we he opened a pediactric office on the mountain. We still have visits to the valley but we don't have to take quite as many as normal since Dr. Barela is here in Showlow we can make some of the visits there, and can have her lab tests done here on the mountain as well. Anyways, the latest results came back and the numbers were awesome. They pretty much are what any other kid would have. They show a slight irritation to the liver But ,good heck she just had a huge surgery. So all in all her Kasai Surgery worked and still is working so that will just buy our little girl some more time. We need her older! Who knows hopefully soon one of these briliant Doctors will have come up with something new and she will be able to grow her self a new liver.
It will happen! We'll keep thinking postive and praying! For now she is sick but very happy and healthy for the time being!!!!!!

We are all enjoying hanging out and enjoying the gorgeous weather we are having and each other and all our time together. We all are truly blessed! I Love MY little family!